Saturday, October 11, 2014

Sorry Not Sorry

I was going to apologize for not posting for 2 years, but as I looked back at old posts, I realized how thankful I am that I haven't posted for so long. This Blog is meant to keep everyone informed when Cloey is receiving life saving medical care. By the Grace of God that has not been required for the last 2 years, and for that I am not sorry! We are, however, headed back to Mayo Clinic in Rochester MN on Monday.  The purpose of this trip is to evaluate Cloey's health and make sure we have a proper maintenance plan as she enters adulthood (eek!) Because her disorder has never been seen before, and the documented cases most similar to hers only lived until 7 years of age, Adolescence and adulthood is uncharted territory.  We will be seeing her team of about 15 specialists that will all work together to make a plan for her future.  For once, we are more excited then scared. I am planning on accomplishing whatever needs to be done to *possibly* make this the last time we will have to go to Mayo in MN before she turns 18 and is able to transfer care to the Mayo Clinic here in AZ.  This may not be possible, or we may need to do one more small trip in a couple years, but this IS the last of her donated funds and she is doing so well that we are sure going to try! It's been just over 10 years since our first trip there and as grateful as we are for all they have done, it would be so nice to put that chapter of our lives behind us.  I will be updating this blog during our stay, hopefully with all good news about our sweet little miracle girl!

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