Friday, January 8, 2010


Well since we have been home from Mayo nothing has changed. The report sent back, said that depending on more testing Cloey could possibly be less dependant on the vent. Since taking her off involves many doctors agreeing it is safe, the nursing agency and the state, we are at a stand still. Her pediatrician wisely suggested we not make any changes during flu season. At that point, depending on her pulmonologist, we may be able to move forward with weaning her off the vent. The process of getting her in school is also a sticky mess. I will post if there are any changes, squeaky wheel gets the grease right?

I know Cloey that's exactly how I feel......